A FAMILY has launched a determined £80,000 fundraiser plea for lifesaving after their daughter has been left bedridden by a slew of ailments.
Lizzie Heale was solely a new child when she was recognized with Ehlers-Danlos syndrome (EDS) – a uncommon group of situations that have an effect on the related tissue of organs, muscular tissues and bones.
The 23-year-old then suffered from bladder failure in 2020 which resulted in a number of diseases akin to continual kidney illness, continual pyelonephritis, vesicoureteral renal reflux and kidney scarring.
On account of this, Lizzie, from Torquay, Devon now requires a wheelchair, a catheter and fixed antibiotics as she sits on a three-year ready record for surgical therapy.
With surgical procedure proving pressing, the household have now turned to personal therapy earlier than the infections turn into too extreme, establishing a GoFundMe final Friday (18 AUG) to assist pay for the medical prices.
Lizzie wrote within the description: “I used to be born with Ehlers-Danlos syndrome; a uncommon genetic multi systematic, organ-involved connective tissue dysfunction that causes defective collagen.
“Signs and diseases [have] developed because of the Ehlers-Danlos syndrome itself. It’s finally an sickness that causes different diseases.
“EDS is a spectrum. Sadly, I’m on the extreme finish of that scale. And over the span of my life, I’ve developed a number of uncommon, life-changing and life-threatening situations.
“I’ve many different diseases and signs, certainly one of them being extreme points with my complete urinary tract and system.
“In my urinary tract, I undergo with detrusor failure, continual kidney illness, continual pyelonephritis, vesicoureteral renal reflux, scarring on my proper kidney, extreme bladder ache but on the identical time I’ve no sensation both.
“I’m laying right here at 23 with a surgical tube; a suprapubic catheter, jutting out of my abdomen to empty the chronically contaminated urine from my failed bladder.
“After three years of residing with these extreme issues, we are actually within the harmful place of being on fixed antibiotic therapy to assault my continual pyelonephritis, which is basically the mixture of kidney illness and chronic kidney infections.
“I desperately want main surgical procedure to not solely save my life however to enhance the standard of life massively too.
“I want a cystectomy, a urostomy, stents positioned in my proper kidney and to create a very new route and passageway, made out of a small a part of my intestines to make a brand new passageway, after which a stoma for my urine to empty on the surface of my physique, right into a bag.
“I at present have a suprapubic catheter, a surgical tube inserted by means of my abdomen and into my bladder. That is solely including to the severity of my infections. These infections will find yourself killing me.
“I’m turning into immune to antibiotics which can be delicate to the uncommon micro organism I proceed to develop in my kidneys, bladder and SPC tube website, which is extraordinarily harmful.
“I’m caught in a hospital mattress all day, day by day. I’m so severely sick that I can’t go away the home until it’s for appointments. I’m in a wheelchair. And I’m at present the sickest I’ve ever been.
“This main surgical procedure actually isn’t low-cost. £70.000! One thing that we can’t afford and now I’m in such a harmful place, we desperately need assistance.
“I wish to reside and to reside a life the place I’m now not in extreme ache, and the life-threatening infections are stopped which merely can’t be finished anytime quickly by means of the NHS.”
Lizzie’s mom Simone added: “As a mum, all I would like for my daughter is to reside her life to the total. At current, Lizzie is in a hospital mattress within the lounge.
“When she does go away the home, it’s in a wheelchair. She is in fixed ache. This surgical procedure could be life-changing and subsequently, lifesaving.
“The extra infections she has the weaker she turns into and her physique turns into immune to antibiotics.
“Sepsis is at all times a significant fear too. Something you can provide to assist Lizzie get this surgical procedure, could be unbelievable.”
Many have been fast to share their help for the household.
Laura Day wrote: “I really feel you. I’ve EDS extra on the JHM facet and it sucks. Each different week is a brand new symptom and one other dislocation. Maintain pushing, hun.”
Kevin Holland mentioned: “Lizzie is the daughter of a really pricey pal. Nobody ought to must face this at any age, not to mention a younger lady like Lizzie.
“When you can, please do donate to assist her get the medical care she desperately wants.”
Rachel Harwood commented: “Accomplished. Terribly unhappy what this poor woman goes by means of.”
Kate and Daymo Chapman added: “Fingers crossed for you all.”
On the time of writing, the fundraiser has acquired £2,725 – to donate, you may go to this hyperlink: https://gofund.me/fb309476